#2341 Tuesday 31st December 2024

 New Year's eve ....  Best wishes to you all for 2025

At the moment we are at an all time low so the new year will be much better for us.  We're selling stuff to get through the business end of year close down.  I've already sold my trailer and hopefully the car will be sold in the next few days.    Kaylia is unaffected by this .... she is focussed on having four new calendars on New Year's Day.

#2340 Wednesday 25th December 2024

Christmas morning.....  WHO SET THE ALARM!

We were awakened much earlier than anticipated...,.. a decent sleep-in was planned.  The puzzle now is who set the alarm?  Naomi?...... Nooooo.   Me?..... Nooooo!  It only leaves Kaylia.  She is fixated on opening her presents ..... so it means that she has worked out how to set the alarm.  She is familiar with the clock as a timer so she has investigated the other functions of the clock on her iPad.   I'm impressed.

#2339 sunday 22nd December

Phew it's hot!  ..... but at least we're not on fire.

We head down to cooler weather in Busselton tomorrow.

Happy Christmas.

#2338 Thursday 19th December

This is for those days when you Jes caint talk proppa.....

#2337 Tuesday 17th December

 

This is the Christmas letter which I recently circulated. I hope it is legible.

Kaylia is off with Jenny today ... Jenny is a carer who provides us with respite under the NDIS.

Several people have commented on the health issues .... it's funny ... these issues don't seem to be such a great problem to us ..... but I guess that could be because the issues are constantly with us.  I am much more concerned with the chronic pain in my right wrist.  I've already had as much treatment for the problem as I'm prepared to do .... so I just have to live with the pain.  (Any further surgery on the wrist would be a repeat of the nightmarish surgery in 2011 .... so no way!)

I'm much more conscious of the lingering effects of the childhood abuse ..... for instance it is difficult to make and maintain friendships.  I'd like to meet up with fellow Landrover nuts .... I have contact details for several "nuts" .... but I can't get myself to make the move!

#2336 Friday 13th December

We're at the Workpower site in Malaga waiting for the support person who will look after Kaylia today. She will spend time at a site that prepares goods for op shops.  She seems to enjoy these times although it can be hard to tell.  The routine of the weekly activity is very important to her.  The activity itself is teaching her skills.

Routine is vital to managing Kaylia.  She insists on a regular routine at home ..... tea at 5pm followed by time on her tablet (Youtube) till 7pm .... then medicine together with a talk with daddy where we review the coming trips for the next few months.  (This way she always has an idea of where she is in 'time')

My health: On Tuesday I had a visit to a urologist. More tests to decide whether to remove the kidney.  I have an "oncocytoma" which may or may not be a problem. The urologist has a case conference with his peers for unusual patients .... apparently I am unusual.   Next visit Feb 4th.  An oncocytoma is a growth which may be a problem depending on how fast it grows and where it is located.

#2335 Monday 2nd December

Kaylia's fine!   She's such a beaut person these days.  I get a bit annoyed by her "looping"  (constant repetition of a phrase) but she can control that if I tell her that it's too much.  ...... but she listens really well. For example, today we were all in the car and the front seat people were discussing cooking the sausages for tea - whether to bake or to fry.  Big ears in the back seat immediately pipes up..... "PAN" (ie fry)

My health... How am I? A bit confused about that actually.... there are several possibilities going on and it's hard to decide which is the real cause.  I had stopped using the CPAP machine (I got sick of it). Now that I'm using the CPAP again, my energy levels are a lot better. I think the kidney problem is causing pain ...... but it's so hard to tell. I see a urologist next week.