No date for the operation yet.
Friday, June 20, 2025
#2390 Friday 20th June
Wednesday, June 18, 2025
#2389 Wednesday 18th June
Sunday, June 15, 2025
#2388 Sunday 15th June
Friday, June 13, 2025
#2387 Friday 13th June
Sunday, June 8, 2025
#2386 Sunday 8th June
Wednesday, June 4, 2025
#2385 Wednesday 4th June
I came across this and I thought ... "This deserves comment!" So ...
1 Call who calls youSaturday, May 31, 2025
#2384 Saturday 31st May
Thursday, May 29, 2025
#2383 Thursday 29th May
Wednesday, May 28, 2025
#2382 Wednesday 28th May
Monday, May 26, 2025
#2381 Monday 26th May
Thursday, May 22, 2025
#2380 Thursday 22nd May
Wednesday, May 21, 2025
#2379 Wednesday 21st May
Surgery status report.... Today RPH gave me an appointment and we will see what opportunities we have for surgery on the public list. If the wait time would be too long, I can stay with the current plan of surgery on June 6th.
Sunday, May 18, 2025
#2378 Sunday 18th May
Wednesday, May 14, 2025
#2377 Wednesday 14th May
While at the chemist this morning, (They of course know of the imminent surgery on 6th June) the chemist mentioned that they had also had a nephrectomy and that the pain on the first day after the op is pretty bad ..... but that it lessens quickly. It's good to have people caring.
I'm taking the Landrover for a decent run next Sunday .... there's a "British Car Day" in Gin Gin that day. Of course Landrovers are very British. I'm meeting up with fellow Landrovians in Midland so that we can drive up in a convoy.
Thursday, May 8, 2025
Tuesday, May 6, 2025
#2375 Tuesday 6th May
Monday, May 5, 2025
#2374 Monday 5th May
Saturday, May 3, 2025
#2373 Saturday 3rd May
I will probably stay with the current surgeon ..... the cheaper options would involve a significant delay in treatment.
On Fridays, Kaylia goes to Workpower in Malaga. While there she usually works at one of the Op Shop centres .... and this week she was accepted at the Salvos for future work. This is good progress.
While in Malaga I have to drive past the rear of Bunnings and they often have very nice stuff in their discard bin. Yesterday I scored a full sheet (900x2400mm) of 16mm MDF board! This is $50 off the shelf. The discard is dirty but undamaged ..... so I'm chuffed. I'm planning to build a slide-in kitchen drawer for the back of the Landrover. ...... sort of like this.
Friday, May 2, 2025
#2372 Friday 2nd May
Thursday, May 1, 2025
#2371 Thursday 1st May
I am booked in for surgery on the 6th June. It will be 3 days in Hollywood Hospital.
Post script:
I'm in turmoil.... I've received the paperwork from the surgeon.... and the amount being charged is much more than the scheduled fee that is covered by HBF and in our current financial state I just can't afford to proceed. I don't know what to do now. I think I will have shop around for a surgeon who charges the schedule fee for the operation.
The following is astounding ..... especially in the context of the bigotry in our world.
Tuesday, April 29, 2025
#2370 Tuesday 29th April
Uh ...oh ... I must have dozed off! It's a while since the last post (Boom Boom .... April 25th Anzac Day has just been .... bugles sounding "Last Post") In the meantime, we've been down to Busselton for Easter. Kaylia loved the trip ... as usual! She travels perfectly in the car .... she listens to music the whole time .... she watches the world passing by but if Naomi or I mention her in conversation, she immediately tunes in to see what we are saying.
Today I visit the urologist to find out the result of the biopsy .... will I be having a hospital visit?
Later ... back from the consult. The kidney is cancerous and has to come out. It doesn't seem to have spread. Surgery in the coming month.
Saturday, April 12, 2025
#2369 Saturday 12th April
Saturday, April 5, 2025
#2368 Saturday 5th April
Thursday, March 27, 2025
Thursday, March 20, 2025
#2366 Thursday 20th March
In four years life will seem boring!
Tuesday, March 18, 2025
#2365 Tuesday 18th March
Yesterday Kaylia was with Jenny .... driving back down the Gt Northern Highway from New Norcia. Jenny used her handsfree to send me a message that they'd be late. The phone created the message as ".... coming from New Nausea." !!!
The biopsy of my kidney that I had a few weeks ago was a dud! It only collected dead tissue. So I have to have the biopsy again tomorrow. The aim is to collect live cells so that they can see if it is cancerous. If not cancerous, then the kidney doesn't have to be removed. The urologist thinks it may well be the baddy ie cancer .... but he wants to be sure before a big operation is undertaken.
Kaylia is very stable and happy .... as long as her world proceeds along the usual path, then her anxiety levels are low. Even when things are upset, her faith in us is such that she can cope with a lot.... she can communicate that she doesn't like it.
Monday, March 10, 2025
#2364 Monday 10th March
Ah .... such a sad time is upon us ...
Last night several posts came up .... long videos of speakers at the European Parliament. The sentiments consistently expressed were views and ideas which I fully support. There were some very eloquent speakers .... they all came across as genuine .... not AI.
The speeches give hope .... recognizing that a tough time faces us .... but emphasizing that European nations must act ... together to face the threats of this new age
Sunday, March 9, 2025
#2363 Sunday 9th March
Thursday, March 6, 2025
#2362 Thursday 6th March
It's very sad to be in times such as these. Just when we hope that times are getting better .... something comes along to completely change the way we see the world.
Monday, March 3, 2025
#2361 Monday 3rd March
Sunday, March 2, 2025
Thursday, February 27, 2025
#2359 Thursday 27th February
Naomi is away in Karratha for 2 days .... this is a regular FIFO arrangement. Kaylia copes really well with Naomi's absence .... the vital strategy is to stick to Kaylia's routines ..... tea at the same time, bed-time routine the same.
No information about my kidney biopsy yet ... the next specialist appointment is on the 11th of March.
Tuesday, February 25, 2025
#2358 Tuesday 25th February
Kaylia has speech therapy sessions on Tuesdays. She enjoys the time. It's largely aimed at training her to use full sentences.
Wednesday, February 19, 2025
#2357 Wednesday 19th February
Monday, February 17, 2025
#2356 Monday 17th February
Thursday, February 13, 2025
#2355 Thursday 13th February
It's Kaylia's "Curve Style" day ..... Lee is here guiding Kaylia through the process of preparing the clothes before the items are listed for sale online. Kaylia handles this well but she needs supervision. She will lose interest if she's left alone.
My health report .... the lesion on my kidney had been biopsied in 2019 but it now seems that the biopsy was not accurate enough and I'm booked in for another biopsy next Tuesday 18th. This will give a clearer idea of whether it is cancer or benign. If it looks sinister, the next step will be to remove the kidney.
Saturday, February 8, 2025
#2354 Saturday 8th February
The funeral for Maxine will be held on Thursday 20th Feb at 2pm.
I've been pondering on the way Kaylia perceives her world. She often remembers past people or places .... and if we re-visit the person or place, she has no interest. It's as though she just wants to confirm that this part of her world is still there.... that her world is constant. How does this idea accommodate important people and things? It's as though people/things transfer into a fixed part of her world and are regularly confirmed automatically.
Tuesday, February 4, 2025
#2353 Tuesday 4th February
Monday, February 3, 2025
#2352 Monday 3rd February
Saturday, February 1, 2025
#2351 Saturday 1st February
Thursday, January 30, 2025
#2350 Thursday 30th January
Wednesday, January 29, 2025
#2349 Wednesday 29th January
Kaylia is very excited about her birthday tomorrow. We've booked at "Hogs Breath" restaurant in Kelmscott .... Hogs Breath would have to be her favorite place to eat and the chain is gradually closing down. Kelmscott is the last one in Perth. She loves having the special icecream dish they serve.
This morning I've been to the hospital to visit Maxine. She is still with us but she's fading.