Tiwa is home! Kaylee is happy! We're all happy.
Kaylie has had some good nights lately .... she has been having headaches again so I've cut down on the Risperdal (to the pre-headache level) and left the Lovan at the new higher level. I think it's the Risperdal that is producing the headaches ... so we'll see. The higher levels of medicine seemed to be reducing the anxiety a bit but that cannot be at the cost of headaches!
Monday, August 9, 2010
Friday, August 6, 2010
#44 Friday 6th August 2010
The past two nights have been good - possibly because of a new variety of Melatonin ... this form is a slow release tablet which may be extending the effect further into the night. Or the good sleep could be due to a reduction in anxiety levels from the small increase in the morning medication.
It can very interesting to see how her mind works at times .... we constantly look for 'high value' things to be motivators during therapy .... and I noticed that some things that I know she REALLY likes, she won't have them as a reward ..... I think it must be that as a reward, she knows that she'll get the goodies in small doses ... whereas she really wants it in a BIG dose. So - no thanks!
One week to Bali!
It can very interesting to see how her mind works at times .... we constantly look for 'high value' things to be motivators during therapy .... and I noticed that some things that I know she REALLY likes, she won't have them as a reward ..... I think it must be that as a reward, she knows that she'll get the goodies in small doses ... whereas she really wants it in a BIG dose. So - no thanks!
One week to Bali!
Wednesday, August 4, 2010
#43 Wednesday 4 August 2010
The past two days have been a return to the anxiety type behaviours that we had earlier in the year ... with the disturbed sleep as a result! This change could be due to the medication 'plateau'ing (ie the effect wearing off) ... or it could be chicken pox effect? I'll try some experimenting.
Needless to say ..... we are tired! And I'm tired of being tired! ... and Naomi's tired of being tired of being tired!
I was at work today and it was so hard to concentrate ... I kept forgetting what I was doing.
Not long to our holiday!
Needless to say ..... we are tired! And I'm tired of being tired! ... and Naomi's tired of being tired of being tired!
I was at work today and it was so hard to concentrate ... I kept forgetting what I was doing.
Not long to our holiday!
Monday, August 2, 2010
#42 Monday 2nd August 2010
Kaylia is in a good phase ... she has had some good sleep, she seems better after the 'pox' .... but she seems a bit more 'stimmy'. We will watch this over the next few days and consider whether to increase her levels of Risperdal & Lovan. It will be important to get the medication level right as we get ready for Bali in 11 days time.
Today was a 'uni day' for Naomi and so Kaylia has had a 'daddy day'. ( Going by the number of times she asks for mummy, she doesn't like this very much!)
In therapy today we noted that the Jodi style of "No-o-o-o-o" seems to have faded away. [Hi Jodi!] She's begun a number of new exercises in therapy ..... and Ian is now learning to be the therapy assistant.
With the ongoing lack of work for Ian, we are re-financing the house loan to pay for the next year of therapy. If more work happens, we won't need it as much .... but if work doesn't happen, the re-arrangement of finances will be very important.
Today was a 'uni day' for Naomi and so Kaylia has had a 'daddy day'. ( Going by the number of times she asks for mummy, she doesn't like this very much!)
In therapy today we noted that the Jodi style of "No-o-o-o-o" seems to have faded away. [Hi Jodi!] She's begun a number of new exercises in therapy ..... and Ian is now learning to be the therapy assistant.
With the ongoing lack of work for Ian, we are re-financing the house loan to pay for the next year of therapy. If more work happens, we won't need it as much .... but if work doesn't happen, the re-arrangement of finances will be very important.
Saturday, July 31, 2010
#41 Saturday 31st July 2010
Pinch & a punch for the last of the month! Isn't the year flying past!
After 6 good nights in a row, Kaylia had another bad one .... she was awake at 3am and making lots of noise till around 5am. What made the difference? It could be that she is getting over the effects of the chickenpox and so she doesn't need the anti-histamine any longer. Maybe the anti-histamine was acting to keep her asleep through the night.
It is good at times like this that Tina is away ... on bad nights, we don't need to worry about Kaylia waking any one else in the house.
Tina will be home in about a week and we're looking forward to that. Tonight we actually went out! To "Fast Eddy's" for tea. Kaylia is very good in those situations now .... much better than times in the past when we felt that we couldn't face going anywhere!
After 6 good nights in a row, Kaylia had another bad one .... she was awake at 3am and making lots of noise till around 5am. What made the difference? It could be that she is getting over the effects of the chickenpox and so she doesn't need the anti-histamine any longer. Maybe the anti-histamine was acting to keep her asleep through the night.
It is good at times like this that Tina is away ... on bad nights, we don't need to worry about Kaylia waking any one else in the house.
Tina will be home in about a week and we're looking forward to that. Tonight we actually went out! To "Fast Eddy's" for tea. Kaylia is very good in those situations now .... much better than times in the past when we felt that we couldn't face going anywhere!
Thursday, July 29, 2010
#40 Thursday 29th July 2010
Kaylee is happy again! She went to school today and coped OK
At present she is singing along with the iPod Touch .... (what a great invention! ... highly recommended for children or adults .... I'd love to have an iPad).
The past few nights have been wonderful ... sleeping right through. I wonder if the change in routine will have made a longer term change in her sleeping habits? Time will tell.
We enter a new phase with Kaylia next week .... no au-pair!
Linda is leaving us (Thankyou for your help Linda.) on the weekend and till I find more work, we will see if we can cope with just the two of us. Tina will help where she can as well ..... but it will be a new way of arranging Kaylia's care.
At present she is singing along with the iPod Touch .... (what a great invention! ... highly recommended for children or adults .... I'd love to have an iPad).
The past few nights have been wonderful ... sleeping right through. I wonder if the change in routine will have made a longer term change in her sleeping habits? Time will tell.
We enter a new phase with Kaylia next week .... no au-pair!
Linda is leaving us (Thankyou for your help Linda.) on the weekend and till I find more work, we will see if we can cope with just the two of us. Tina will help where she can as well ..... but it will be a new way of arranging Kaylia's care.
Tuesday, July 27, 2010
#39 Tuesday 27th July 2010
The chickenpox has progressed through the usual course ... and poor Kaylia has suffered!
She has spots in some terrible places and they itch big time. Fortunately the Polaramine controls the itching fairly well. Monday she slept almost all day ... and then was in bed early and slept all night. She's sick! Today she has been OK but tired ... and then she slept again for most of the afternoon.
She will have Wednesday off from school as well ..... but she seems to be on the mend.
She has spots in some terrible places and they itch big time. Fortunately the Polaramine controls the itching fairly well. Monday she slept almost all day ... and then was in bed early and slept all night. She's sick! Today she has been OK but tired ... and then she slept again for most of the afternoon.
She will have Wednesday off from school as well ..... but she seems to be on the mend.
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