Friday, October 27, 2017

#1679 Friday 27 October

The big guns are out .... Kaylia has been given an ultimatum.  She has to be a good girl at school ... if she doesn't she will have toast and cheese for  tea while we all have fish and chips!!

Stay tuned!

Evening
The verdict from school was that she had behaved..... so she had chicken and chips.  This improvement may have been due to the threat of  dire punishment.... but it could also be due to the weather!  She has always reacted to windy weather.... and it was very windy yesterday. Today the wind had dropped.... maybe that was it.  Who knows.  Until she can communicate fully, we won't be able to know.

Thursday, October 26, 2017

#1678 Thursday 26 October

Today has been...... Interesting?

It began with me presenting Kaylia with a new pair of music headphones.... with bling!   Kaylia was very appreciative.....
She immediately grabbed them and took them with her for the car trip to school. 

Then in the afternoon I had a phone call from school..... to discuss some behaviour issues that had presented during the day.  In summary, Kaylia had been naughty!  

The situation will require some thoughtful solutions from Naomi. 

Wednesday, October 25, 2017

#1677 Wednesday 25 October

All is well..... we have a happy girl who is rapidly becoming a very assertive teenager.  She's not defiant or disobedient.... just the opposite.... but she knows what she wants and she is very clear in letting us know.  She spends much of her time in her room..... and she insists that we leave!

But in other ways she is still the same..... still
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..... Oops!  It's 6:30am and we forgot to put the bins out!  I've just raced out to drag them up to the street while the rubbish truck was coming up the hill ..... I  just made it in time.
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News for Chris and others..... the task of moving the bungalow is progressing.....   the area has now been cleared and I'm beginning to construct the new foundation.

Sunday, October 22, 2017

#1676 Sunday 22 October

At Dome for a family breakfast.....

Saturday, October 21, 2017

#1675 Saturday 21 October

Bilgomen pool opens today!  Kaylia has been counting the days.  It's noon and she has been there for a couple of hours.

I've begun dismantling the covered area between the bungalow and the house.... in preparation for moving the bungalow about 3 metres sideways.  This task needs to be done soon before I run out of "puff" so I hope to get it done this summer.


Kaylia's changing her behaviours a bit.... she no longer wants adult company as much.  She used to want one or other of us to sit with her.... and do tickles.... and talking....   Lately she just wants time on her own and she will tell us "Go!".  She's quite assertive and definite. 

Friday, October 20, 2017

#1674 Friday 20 October

There's a series of articles in the media currently that are bashing the NDIS.... and it has me puzzled because people are saying that they are worse off under NDIS.  This is not our experience.  Pre-NDIS we received no assistance whatsoever for Kaylia....   now we can have a fully funded program of therapy for her!  I really wonder who is advising the parents who are complaining.

Kaylia's mouth ulcers are finally clearing up and she is much happier.

Thursday, October 19, 2017

#1673 Thursday 19 October

It's been another strange day.... she is very happy and she's in her room droning away.... but she didn't eat a thing at school!   If I could rouse myself, I'd ask school if I could just sit and observe and see what she does during the day..... what does she do when the other kids are eating their lunch?  It's rather mysterious.

I don't think that the mouth ulcers are bothering her any more.... they seem to have healed and she is not sensitive any more....

Funny story......
I think I've told you before about how Kaylia will recite her stories but at 5 times the normal speed.....  well tonight Naomi realised that Kaylia had been trying to learn the words to one of the bedtime lullabies.... so she employed the "karaoke" technique.   Kaylia cooperated well for most of the song.... but finally she had had enough..... and raced through the song at top speed!