#1149 Saturday 9 May

We're in a good space at present ..... Kaylia is so happy and alert. Last night she was laughing at jokes made by the adults ..... this may well have been mimicking the adult behaviour but it still felt very good.

Kaylia is still likely to be very dependent and to need lots of care ..... but when she's such a happy, loveable person it makes all the hard work worthwhile. 

Afternoon:  we're at Bunnings in the playground...... I've been pondering the words above .... they paint a rosy picture ..... mostly accurate but we still need to carefully manage her world to produce this happiness.  To a real extent it's still dependent on medication ..... from time to time I test each medicine to see if she still needs it.   Unfortunately she still does.