Saturday, March 15, 2014

#844 Saturday 15 March

DB
It's 6:30am ..... she hasn't been able to settle after the 5am loo run .... so now the iPad is saving the day once again.  With headphones on she can play her noisy games without disturbing the sleeping one. 

10am. She has been to the op shop with Lara .... look at the face!

Friday, March 14, 2014

#843 Friday 14 March

Weird Hair Day!   Kaylia ended up with 4 ponytails and lots of very colourful bands .... but she lost patience with the hair process .... she wanted to go to school!


Wednesday, March 12, 2014

#842 Wednesday 12 March


DB

Dentist Day!  She's very excited!  I didn't dare tell her yesterday as she would then be hard to calm down.  I told her at breakfast that she would be going to the dentist after school ..... and she just looked at me with a great big grin!

Today I've been contacted to ask if I would share our "Kaylia Story" with a parent who has an adult age child struggling with autism and melt-downs .... with no medication.  Very sad to have struggled all that time without help.

Kaylia in the chair.  She needs a small filling .... so it will mean a day in hospital and general anaesthetic for her.  Anything  more than a cleaning means a GA.

Tuesday, March 11, 2014

#841 Tuesday 11 March

DB
Midday ..... I wonder what therapy will bring today?  She is developing so fast that we don't know what she will surprise us with.

Tomorrow will be "Dentist Day"  .... she will be very excited so we can't tell her too soon or she will expect to be NOW!

Monday, March 10, 2014

#840 Monday 10 March

DB
Kaylia's current favorite  song is "Close to you" .... she sings it in the car as we drive along.  She has several favorites.  I've just downloaded a couple of Carpenters CDs to get the track for her  .... gee the Carpenters  made beautiful music!

Kaylia also sings many bits of classical music too.

6pm
Well .....!!  I just been privileged to watch an amazing therapy session. Kaylia was really fired up and she was alert, quick, correct ..... she had a brand new exercise (that was a the right difficulty level) and she just took it all in her stride.
During the imaginative play part she was making Teddy bear be a character .... she was asked ... "What is he feeling?" Hot "what will he do?"  Hose (!!!)

It's getting very hard to remember what Kaylia was like a year ago.  She is so different now.

Sunday, March 9, 2014

#839 Sunday 9 March

WB ... I missed the 5am wee run and by 5:30 the bed was wet. Bummer.

The routine continues today .... God save the Routine!  Sometimes I feel as if the routine is what makes it possible to keep going..... I know what happens next so no thought is needed.

Later:   We've had a morning at Aunty Mim's ..... where Kaylia managed to fall over in the bath .. it spit her lower lip and clearly  hurt her .... but in her usual fashion she just carried on.  She has a very high pain tolerance.
Now we're at Aunty Max's ..... in the bath again!

We were given a good lesson in how well Kaylia understands our adult conversations .... while Kaylia had been playing, the adults had been discussing our plans for the afternoon .... and later Kaylia said that she wanted to go to XXX! She'd been listening very well.

Another "moment" ..... Teddy can get insistent at times and Zoe had taught him  that if the count got to 3, he was going outside.  Tonight Naomi had warned Teddy and said "That's one ...."   Kaylia promptly says "Three!"