We've just had another "Ah hah!" moment ....
For ages, Kaylia has been saying "..... doh ta! ...." ... which we have thought meant "doctor" (because she likes going to the doctor .... for the jelly beans!)
But we were driving through Midland a short time ago and while going past the "Play Centre Midland", we heard a little voice say ".... doh ta! ...."
The mystery was solved!
The mystery remains of why she has created that word ... she can very clearly say "Play Centre" and she knows what it means .... so why does she have a different word?
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Saturday, October 2, 2010
#74 Saturday 2nd October 2010
Forgive me ... I'm going to have a rant!! I've been to the local swimming pool with Kaylia this morning .... for some time now, we have been eligible (on presentation of her Centrelink Health Care card) for a concessional entry - Kaylia pays but her carer is free.
This morning I was told that to get the free carer entry, I must have a "Companion Card"! I thought ... "This is odd! Why do I have to have a card to prove I'm a carer for Kaylia?" .... so I downloaded the application for the Companion Card ..... and it is not about the carer at all .... to get the card, you have to prove that Kaylia is disabled!!
This has got me angry! Why must we go through the trauma of proving that she is disabled for a second time? She already has a card from Centrelink saying that a government department accepts that she is disabled .... why do we now have a different government department saying that we must prove her disability again!! Surely the Centrelink card should be sufficient to allow the issue of the Companion Card?
I have written an email to this Companion Card department and I will take this to Julia if I must. It is unjust!
On the home front, the poor sleep continues ... I think it is safe to say that increasing the Lovan dose is not increasing the effect on anxiety. We need to find a different solution.
For the immediate future, we have decided to change Kaylia's routine so she only sleeps in her own room. This will mean that we take turns to sleep in her room till she has accepted this. But it will mean that we have a good night's sleep every second night at least.
It will be a noisy few nights till she accepts the new routine ... C'est la vie!
This morning I was told that to get the free carer entry, I must have a "Companion Card"! I thought ... "This is odd! Why do I have to have a card to prove I'm a carer for Kaylia?" .... so I downloaded the application for the Companion Card ..... and it is not about the carer at all .... to get the card, you have to prove that Kaylia is disabled!!
This has got me angry! Why must we go through the trauma of proving that she is disabled for a second time? She already has a card from Centrelink saying that a government department accepts that she is disabled .... why do we now have a different government department saying that we must prove her disability again!! Surely the Centrelink card should be sufficient to allow the issue of the Companion Card?
I have written an email to this Companion Card department and I will take this to Julia if I must. It is unjust!
On the home front, the poor sleep continues ... I think it is safe to say that increasing the Lovan dose is not increasing the effect on anxiety. We need to find a different solution.
For the immediate future, we have decided to change Kaylia's routine so she only sleeps in her own room. This will mean that we take turns to sleep in her room till she has accepted this. But it will mean that we have a good night's sleep every second night at least.
It will be a noisy few nights till she accepts the new routine ... C'est la vie!
Thursday, September 30, 2010
#73 Thursday 30 September 2010
Today Kaylia went to a party! She was invited to a friend's "Not A Birthday" party with a few others from her school class .... and it was good! She worked hard to overcome her fear of a new situation. She was interested in the others .... it was all positive. She was quite disturbed by the trampoline but by the end of the party she had gathered her courage and climbed aboard.
Here she is helping to ice some cookies.
The past few nights have all been nights where Kaylia has been up for a few hours in the middle of the night .... last night she at least was a little more quiet! The nights are bad when she makes so much noise that she keeps us awake.
I'm still in favour of my theory that it is anxiety that is the enemy here ... decreasing effectiveness of medication equals increasing anxiety ... when she wakes, she can't go back to sleep.
Here she is helping to ice some cookies.The past few nights have all been nights where Kaylia has been up for a few hours in the middle of the night .... last night she at least was a little more quiet! The nights are bad when she makes so much noise that she keeps us awake.
I'm still in favour of my theory that it is anxiety that is the enemy here ... decreasing effectiveness of medication equals increasing anxiety ... when she wakes, she can't go back to sleep.
Tuesday, September 28, 2010
#72 Tuesday 28 September 2010
That was a bad one! Up at 3am and no sleep since. By morning we were RS and I cancelled going to work. Instead I took Kaylia to the pool and she had a good (tiring) time. After lunch it was sleep time .... all afternoon!
What will the night bring?
I had some D&Ms to share with you ..... but I can't remember what they were!
What will the night bring?
I had some D&Ms to share with you ..... but I can't remember what they were!
Monday, September 27, 2010
#71 Monday 27 September 2010
Well day one of the school holidays wasn't too bad! We had a Bunnings trip first (to buy decking for the little extension) and then some quiet time followed by lunch and a trip to the library (Kaylia's idea). Unfortunately the library was closed .... Public holiday! Boy was she cheesed off!
So it was off for some playground time. Then quiet time before tea preparation.
It was weighing time again yesterday .... Her weight is up the usual amount. Average weight gain (since I began tracking it) has been 0.15% per day. We'll be very glad to see an alternative to Risperdal. It seems that only a small proportion of people get the weight gain problem ... but she's got it!
- Posted using BlogPress from my iPad
So it was off for some playground time. Then quiet time before tea preparation.
It was weighing time again yesterday .... Her weight is up the usual amount. Average weight gain (since I began tracking it) has been 0.15% per day. We'll be very glad to see an alternative to Risperdal. It seems that only a small proportion of people get the weight gain problem ... but she's got it!
- Posted using BlogPress from my iPad
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