#1658 Saturday 30 September

I've missed a few days.... I've been very sick.... I was shaking so much I couldn't even hold my phone let alone be conscious enough to use it.  It's a UTI and it's the worst I've ever had.

Kaylia I think has been oblivious... she usually comes and sits beside me when I'm on the bed.... but not this time.  I suspect that she was being occupied well by Nita and Sverrin.... they are gems.

I'll stop now.. It's still too hard to hold the phone.

4pm  I'm feeling a bit better now.  I've been pondering our wonder child..... how would I be managing if she were a normally developed 13 year old? Probably not well.... she would probably be testing my patience sorely.... whereas our Kaylia is low demand in many ways.... her constant pleasure with our company is a delight for me.

#1657 Wednesday 27 September

 

Last night I was wired up for a "sleep study" ...... wires all over my face and head..... and I was fully expecting Kaylia to be very annoyed by it all.  I expected her to at least insist that I take it off.... if not actually rip it off herself..... but no.... she just looked at me with a "You're weird" expression..... and carried on with "I like school."

Today she has Friendship Club in the afternoon...

#1656 Tuesday 26 September

Significant event!   In the morning she usually comes upstairs for a cuddles session ... which nearly always has some tickling involved.  This morning ... unprompted ....she asked me if I wanted an "arm tickle" ..... !!  This is very significant as it shows that she was aware of me as a person who might like to be tickled!  She has never shown this awareness before..... previously she has only been aware of her own needs.

#1655 Monday 25 September

It's a public holiday today..... Naomi gets a chance to rest..... so at 6am I'm downstairs with Kaylia..... she's on her iPhone.  The aim is to delay going upstairs as long as possible!  Kaylia has just put her face in mine..... she likes sleep in time.... it means lots of tickles and lots of stories about school, Bali and Busselton!

6pm   it's been a day of drives..... tickles..... bath..... drive...... and through it all, trying to control her looping.  It's hard work.  Most of it is standard routine for holidays..... but the looping is a new and unwelcome element.

Tomorrow she will have therapy in the morning and then in the afternoon we'll go over to Fiona Stanley Hospital to have her new brace adjusted so that it's more comfortable.