Welcome to follower #8 ... Jodie! (Where are you now?)
The "No ha ha" is still a feature of K-speak ...... it can be quite emphatic at times!
Articulation is a big problem and when you've learned k-speak, it's clear that she knows most of the words .... she just can't get the sounds right! We'd like to work on this but the practicalities of time and money mean that we must prioritise the problems .... and speech is close to the top but not quite there. In an ideal world, she'd be getting lots of speech therapy.
The unusual pacing continues .... it's becoming a concern.
Naomi's mum is out of ICU and the future is beginning the take shape
- Posted by the Kaylee Blogger
Saturday, November 6, 2010
Thursday, November 4, 2010
#92 Thursday 4 November 2010
It's 7:30am .... waiting for school time and saying Hi! to you all. I often wonder how many (of the original "Team Kaylee") are still with us ... there is no way to tell if people don't become 'followers'.
Naomi's mum is still in hospital ..... for a while yet I suspect. Rehab will follow. Life is settling to new routines .... more time spent traveling - no objections from Kaylee!! It's still "car time"!
Kaylee is showing some effect from the Ritalin .... not in behaviors
.... but in reduced appetite. She is not wanting to eat as much .... this was a large part of the reason for Ritalin. Her next weigh in is next Sunday so it will be good if we can see a second reading where the weight has gone down!
- Posted by the Kaylee Blogger
Naomi's mum is still in hospital ..... for a while yet I suspect. Rehab will follow. Life is settling to new routines .... more time spent traveling - no objections from Kaylee!! It's still "car time"!
Kaylee is showing some effect from the Ritalin .... not in behaviors
.... but in reduced appetite. She is not wanting to eat as much .... this was a large part of the reason for Ritalin. Her next weigh in is next Sunday so it will be good if we can see a second reading where the weight has gone down!
- Posted by the Kaylee Blogger
Tuesday, November 2, 2010
#91 Tuesday 2 November 2010
Turmoil! Naomi's mother is in hospital after a heart attack & stroke. Obviously this causes turmoil in Naomi's family and the waves spead out to engulf us all .... I'm maintaining 'normality and routine' for Kaylia while Naomi deals with the issues.
Through all this, Kaylia is a little trouper .... of course!! .... this evening I was remembering little bits about the Kaylia we had a couple of years ago ... she has come such a long way. One day she will read this blog and she will be proud of what she has done .....
Through all this, Kaylia is a little trouper .... of course!! .... this evening I was remembering little bits about the Kaylia we had a couple of years ago ... she has come such a long way. One day she will read this blog and she will be proud of what she has done .....
Sunday, October 31, 2010
#90 Sunday 31 October 2010
Kaylia has been on the Ritalin for a week now but I can't see any clear changes that can be linked to it. She has been wanting more 'med-sin' lately (for her this means Panadol or Pain-stop. She can now tell us what is hurting.) ... this may be due to another growth spurt coming as the other medicines haven't changed and Ritalin shouldn't cause headaches. Headaches and body pains have been a common problem during her earlier growth spurts.
Kaylia had a wonderful day out yesterday with Kym & the boys ... going to the show! She came home with lots of goodies and spent ages going through them after she got home. She was very happy! Thanks Kym!
The sleep situation is getting much better but we haven't solved it yet .... last night she was awake from 2am to 6am .... and then slept till 11:30am!! At least she has learned to stay in bed when she wakes up .... before she would start galloping round the house .... elephants at 2am!!
Kaylia is getting to be very good at identifying the places that are important to her .... Subway, Nandos, playground, $2 Shop .... and so on! We drive along the road with a little voice in the back telling us just what she can see.
Two weeks till Zoe arrives and we're looking forward to her arrival. I'm showing Kaylia a photo of Zoe .... but it isn't really needed. Kaylee always accepts new people really well.
Kaylia had a wonderful day out yesterday with Kym & the boys ... going to the show! She came home with lots of goodies and spent ages going through them after she got home. She was very happy! Thanks Kym!
The sleep situation is getting much better but we haven't solved it yet .... last night she was awake from 2am to 6am .... and then slept till 11:30am!! At least she has learned to stay in bed when she wakes up .... before she would start galloping round the house .... elephants at 2am!!
Kaylia is getting to be very good at identifying the places that are important to her .... Subway, Nandos, playground, $2 Shop .... and so on! We drive along the road with a little voice in the back telling us just what she can see.
Two weeks till Zoe arrives and we're looking forward to her arrival. I'm showing Kaylia a photo of Zoe .... but it isn't really needed. Kaylee always accepts new people really well.
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