Saturday, December 3, 2011

#445 Saturday 3 December

The 'experiment' is concluded I think ... the results are positive. Splitting the dose of Risperdal is good. .... and failure of dosage produced an expected result. We forgot a dose in the evening and the lack of Risperdal in the next 24 hours was obvious!

Today Kaylia has been with me all afternoon while Naomi attended a seminar on insomnia in children ... very appropriate eh? (One of the things she found was that we actually "have it pretty good" .... other parents fare worse than us!). In the late afternoon Kaylia had an anxiety attack ... not sure why ... maybe she was hungry .... maybe the fact that mummy wasn't here was the trigger. It's hard to know. She settled again after an hour and a half.

The office can be a very social place for me .... I frequently find myself sharing experiences with other parents ... it's good to see how some parents are seeing clear benefits from their ABA program .... and quite sad to see how some parents haven't accepted that the ABA cannot work if they don't personally get involved.

Thursday, December 1, 2011

#444 Thursday 1 December

Time flies!  1st December!  Not long to the end of the year ..... not long till we head off to Bali again!  We leave in the evening of the 13th and we'll be there till 10th January 2012.  It's the longest time that we've been away and it will be interesting to see how Kaylia adjusts .... more than interesting!

The medication story continues .... the effect of the split Risperdal dose continues to be good and appetite is down.  Last night we forgot her evening dose ... this morning she's very 'spacey' and it's hard to get her attention.

By tea time, the missed dose produced high anxiety behavior and a melt-down.



Wednesday, November 30, 2011

#443 Wednesday 30 November

A little treat for all of you who care about Kaylia!






Tuesday, November 29, 2011

#442 Tuesday 29 November

Tired. Long day. Not much happened but it still feels like a long day.

Kaylia continues to be calm and happy. She is still stimming a lot but there's a different flavor to it. The change is so welcome.

We had therapy and a review again today ... and of course we had to have Nandos again! It's part of her routine now ... not that I mind.

I had an email yesterday asking me to sign a petition to try to stop the ALP move to legalize same gender marriage .... regardless of how I think about this issue, I greatly object to one group of people trying to over-ride the rights of others! This is such an obnoxious part of human societies all over the world.

Monday, November 28, 2011

#441 Monday 28 November

Kaylia has been up since 4:00am and now at 6:30 it feels as though she has been running round all night. I wonder what the moon phase is? It's nowhere near the full moon .... so she can't use that excuse!

Despite the way she can't sleep, things are still good compared with the past when she would wake and just scream for an hour or so till we were able to cuddle her back to sleep. Those were bad times.

Night:
Kaylia's therapist remarked today "whatever it is that you're doing with her medication .... keep doing it!". Clearly he sees the improvement I've been talking about.



Sunday, November 27, 2011

#440 Sunday 27 November

By george, I think we've got it!  (Apologies to 'My Fair Lady')  Kaylia's normal behaviour till now has been that of early morning anxiety ... shown as nagging for her routine events such as swimming.  Today?  .... she is continueing her exploring of the cupboards to find old activities that she used to do long ago .... she has had a morning singalong session .... she is much happier.  It's as though we have a new girl in the house! Wow.

Last night we booked Naomi's flight to Bali on 21st December .... Kaylia, Kat & I go on the 13th so she will have a week of good sleep without the bed hog!