Hi all. Naomi has had a tiring day - 7 hours straight consulting .... that's a heavy workload! Kaylee has had a tiring day too ..... swimming classes followed by an afternoon with Kym and her family. She is very popular with Kym's 4 boys ..... they look after her really well and the social interaction (which is essential to the day) is very good for Kaylia. ..... but she is tired tonight and I hope that she sleeps through the night. Last night she woke at 3am and was then awake till 6am. She seems less affected than I (by the lack of sleep).
She has made huge progress over this year .... learning to communicate, to express herself. The instructions she uses can be hilarious at times. On her therapy drills is to instruct others on what they are to do ... she has to name the action and the object that is being referred to. Kaylia has generalised this into daily life and uses it to arrange people the way she wants them ..... "GET UP ..... walk out!" Most of the time it is completely appropriate and OK ... but occasionally it cannot be complied with and we have to try to explain to her why we can't do it that time.
Kaylia's iPad arrived yesterday and it has been set up ready for school. Already I have found some problems with one of the most useful apps .... but an email to the app writer has produced very fast response .... the changes needed will be made in a couple of months at the next update.
Later:
The child is a genius! I went upstairs to find that she has been on my main computer, found a picture of herself ... and set it as the desktop! (Naomi watched her do it) Now if she had done this on the iPad, I'd be fairly impressed ... but to do it in WinXP, I'm amazed.
- Posted by the Kaylee Blogger
Saturday, October 23, 2010
Thursday, October 21, 2010
#84 Thursday 21 October 2010
Today was the day I went to the wrist doctor .... my wrist is bad! Not the worst he's seen (he showed Naomi & I pictures of a worse one, even some video of the operation itself...blood and gore to boot). He said that my wrist is not a repair job ... just a "salvage what we can to reduce the pain" job! The plan is to try cortisone injections to see if it helps the pain ... and then plan toward an operation where he removes two of the wrist bones (which cause much of the pain) and fuse the remaining bones together so they're not rubbing. Great.
My hope is that I can delay the operation for a while (with the cortisone) and maybe some other medical miracle will come along. It still means that my workshop interests are over.
On a different note, I forgot to give Kaylee her melatonin tonight. It's 9.30pm and she is still awake. Naomi has just worked out what has been going wrong. Apparently for the last two hours, Kaylee has been going "pink iPod, black iPod, big iPod", requesting one after the other. When Naomi got fed up with giving her the iPod that she was using, Kaylee started saying "Mummy - little iPod". After two hours of this Naomi asked me if Kaylee had had her meds tonight. Guess who is in the sin bin.
My hope is that I can delay the operation for a while (with the cortisone) and maybe some other medical miracle will come along. It still means that my workshop interests are over.
On a different note, I forgot to give Kaylee her melatonin tonight. It's 9.30pm and she is still awake. Naomi has just worked out what has been going wrong. Apparently for the last two hours, Kaylee has been going "pink iPod, black iPod, big iPod", requesting one after the other. When Naomi got fed up with giving her the iPod that she was using, Kaylee started saying "Mummy - little iPod". After two hours of this Naomi asked me if Kaylee had had her meds tonight. Guess who is in the sin bin.
Wednesday, October 20, 2010
#83 Wednesday 20 October 2010
Procuring a supply of Ritalin has become a saga! Quite involved but hopefully we may get some today .... Eight days afters being prescribed. Then we wait for it to kick in so we can gauge the effect.
Sleep has been messed up by the full moon as usual ... Tuesday was bad! She seems to be getting more and more noisy. Happy noise ... But it means that no-one in the house sleeps as she sings and makes her happy noises!
A couple of people have noted that Kaylee is a bit 'spacey' for yesterday & today ..... this may be due to a small increase in the Lovan dose I started on Monday. If so, it indicates that the dose has gone too high ... tomorrow, I'll try reverting to the 50mg dose.
Still no Ritalin today!
At the recent meeting at school, it was decided that we would get an iPad for classroom use with Kaylia ... so that she can continue to use the iPad for writing practice, for phonics, for motivation .... a tax refund has come in so I'll be ordering one tonight. (Just the base model)
- Posted by the Kaylee Blogger
Sleep has been messed up by the full moon as usual ... Tuesday was bad! She seems to be getting more and more noisy. Happy noise ... But it means that no-one in the house sleeps as she sings and makes her happy noises!
A couple of people have noted that Kaylee is a bit 'spacey' for yesterday & today ..... this may be due to a small increase in the Lovan dose I started on Monday. If so, it indicates that the dose has gone too high ... tomorrow, I'll try reverting to the 50mg dose.
Still no Ritalin today!
At the recent meeting at school, it was decided that we would get an iPad for classroom use with Kaylia ... so that she can continue to use the iPad for writing practice, for phonics, for motivation .... a tax refund has come in so I'll be ordering one tonight. (Just the base model)
- Posted by the Kaylee Blogger
Sunday, October 17, 2010
#82 Sunday October 17th 2010
It's been an interesting day .... I realized this morning that we had run out of Lovan ... I'd forgotten to get a new prescription and our local chemist is not open on Sundays (I leave the script with them).... by midday we could see the altered behavior and so we called into another local chemist who does open on Sundays. After I explained the dilemma, he gave us a few tablets to keep us going till I can get a new supply tomorrow. I think I'll change chemists!
After her dose was topped up, the anxiety decreased within hours. It's a very clear effect and it confirms that we're on the right track.
Since Naomi will be away all day at uni tomorrow (on her birthday!), we decided to swap days and we had her birthday today ..... Kaylia loved it!
We have found a new aupair! Welcome to "Team-Kaylee" Zoe! (in anticipation of your arrival next month.)
It's 6:00pm and Kaylia is in her nightie already. She has made this part of her routine .... she gets dressed for bed and then has downtime with DVDs & iPods & stimmy toys till she is ready to sleep. This usually happens around 8:00pm ....
- Posted by the Kaylee Blogger
After her dose was topped up, the anxiety decreased within hours. It's a very clear effect and it confirms that we're on the right track.
Since Naomi will be away all day at uni tomorrow (on her birthday!), we decided to swap days and we had her birthday today ..... Kaylia loved it!
We have found a new aupair! Welcome to "Team-Kaylee" Zoe! (in anticipation of your arrival next month.)
It's 6:00pm and Kaylia is in her nightie already. She has made this part of her routine .... she gets dressed for bed and then has downtime with DVDs & iPods & stimmy toys till she is ready to sleep. This usually happens around 8:00pm ....
- Posted by the Kaylee Blogger
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