#37 Thursday 22nd July 2010

The recent nights have been better but spoilt by Kaylia having a heavy cough ... this wakes her up and then she doesn't sleep again. I've been keeping score by assigning a +1 or -1 to the night ... so far the total score is positive! (Funny - it doesn't feel that way.)
Today I took Kaylia to have a photo taken for her passport renewal .... and of course she wouldn't sit still for it. The result is less than perfect and we have to add a note that "this is as good as you're going to get from an auty one!" This passport is for our battery re-charge trip booked for 3 weeks time - a week next to the swimming pool in Bali. Of course we have all fingers crossed that we won't have the same problems as we did in December. We will have a full stock of medications and batteries for the iPods!

#36 Monday 19th July 2010

Saturday night was bliss! For various reasons, we had let her start the night upstairs .... she was very tired and she slept right throught the whole night! Then Sunday night was bad again .... she woke up thoroughly at around 2am and wouldn't settle .... she spent the next 3 hours playing in her room.
The practicalities of adult survival are definitely interfering with the management of the sleep problem!
Medication seems to be about right at present .... 0.4ml Risperdal plus 18mg Lovan .... she is still a little bit stimmy but acceptable ... and she doesn't seem to be having any headaches .
We had a little 'sweet spot' on Friday .... Kaylia had spent the morning at Kym's and when told (as she was leaving to go home) ... "I'll see you on Tuesday." .... Kaylia responded .... "I want Tuesday!"