Saturday 3rd July 2010

Wow - what a night! (Bad - that is!) Awake at 3, bouncing and yelling at 4! We had breakfast at 5:30 .... no point in trying to sleep. Then she was back to bed at 7:30 and now at 10:30am, she is still asleep. We'll have to wear her out today so she has a chance to return to a better sleep pattern.

Thursday 2 July 2010

The last two nights have been good .... I'm developing a new theory ... Kaylia always kicks off the sheets/blankets and I've interpreted this as "Kaylia is too hot" but she then gets cold .... if she is kicking them off for some other reason, then she will get cold and this would wake her. So last night, I covered her up again each time she kicked the blankets off ... and she stayed warm and stayed asleep. Great! It meant that my sleep wasn't perfect but it was better than if Kaylia had awoken.

Today we had a 'Kaylia Konference' at school. The crux of it was that it had been a dfficult start to the year but that things have come together well and by the end of the first half, she is starting to cope with Year One level work. This is an excellent result and it lays the foundation for a good second half of the year.

Tuesday 29 June 2010

Once again, we have the cycle of good night - then bad night ..... Sunday night was very good and then Monday night was very, very bad. It feels like it was the worst night ever. Kaylia awoke at 1am and was then awake for the rest of the night. She has had other bad nights .... but each time, after a while she would sleep again. Last night, she was awake till school time ...
For a change she actually woke other people .... so I'm not just dreaming that she is awake! Much of the time was spent trying to stop Kaylia from going downstairs to be with Mummy (who was desperately trying to sleep so she could face the next day ....).
I didn't go to work today .... just took Kaylia to school then went back to bed and slept.
I think I will try a new tactic .... when she wakes, I won't try and get her to sleep again ... I'll just accept that she is awake and get up myself .... have some play time with her, perhaps go for a drive. I think that it is the process of trying to sleep (while continually being re-awoken) that is so debillitating. Perhaps if I just stay awake, it won't feel so bad.

Sunday 27th June 2010

This blog is proving to be a useful tool for remembering what is happenning with Kaylia .... I have other recording systems for medication & sleep but I find that I am not as diligent in their updates as I should .... I'm finding that I am more consistent in 'blogging' and this blog has enough detail that I can refresh my memory when doing updates to the other records.
Friday night was a good night - bliss - and she slept right through. Then Saturday night was very disturbed. It's amazing that the rest of the house sleeps through all her noise! At around 3am, she was galloping up & down the stairs and playing on her xylophone in her room! (Maybe it is all the late night World Cup watching that lets people sleep through it!)
She has had a head cold for the past few days and didn't have much energy today.
The 0.3mg of Risperdal plus 13ml of Lovan still seem to be providing good 'stim/anxiety' control without side effects. This appears to be a 'plateau' phase and we may notice a reducing effect eventually - I'll update the medication record to see how long the plateau period lasts.