The new moon is on Monday morning ... and true to form, the lead up to that event is a bad night for Kaylia. At 2:30am, she & I are sitting downstairs watching the Wiggles! If things go to the usual pattern, she'll be awake for an hour or so ... then we'll be able to sleep till the morning. Till then, I'm a good leaning post that she can cuddle up to.
What's happening today? Kym Time! ..... then some Sally Time before she has some more Daddy Time ... then it will be Mummy Time!! Mummy Time is the BEST time! Kaylee glows when she has Mummy.
.... and an added bonus today is a friend's birthday party this afternoon.
7:30am. Ooh what doozy that was! She was wide awake from 2 to 6 .... she's a mess .... I'm a mess ... what a day it's going to be! I just hope that she has a sleep during the day.
One of the hardest parts of these nights is that I have to stay alert to make sure she doesn't kick or hit my wrist by accident.
Saturday, April 16, 2011
Friday, April 15, 2011
#227 Friday 15 April 2011
So far the new calm Kaylia continues .... the lowered dose of Lovan is an improvement. This process of constantly aiming for a moving target can get wearing! The optimum dose changes as the body changes .... and also changes as tolerance for the drug changes .... it probably changes with activity level too!
When the right dose is found it really makes a big difference.
This morning the hairstyle is 'daddy plaits'. .... double banded pony-tails .
I'm not very good at this hair thing!
When the right dose is found it really makes a big difference.
This morning the hairstyle is 'daddy plaits'. .... double banded pony-tails .
I'm not very good at this hair thing!
Thursday, April 14, 2011
#226 Thursday 14 April 2011
Well ... I'm booked in to have my wrist operated on ... on May 24. It will be a partial fusion ... remove the schaphoid bone and fuse the other bones.
I should retain about 50% of the movement and lose most of the pain. It is a first step operation ... if it is not successful, I can go to a full fusing. The surgeon was able to look at the X-ray and show where the original injury was ... and roughly how long ago it happened. He showed where the current pain is coming from and explained how the problem will degenerate if no action is taken.
It will take about 6 months to fully heal and I will have a cast on the wrist for about 6 weeks.
Oh and the Lovan experiment?.... it seems to be confirming my suspicion ... Kaylia has been less 'nagging' and more cheerful yesterday and today. I'll continue the trial.
I should retain about 50% of the movement and lose most of the pain. It is a first step operation ... if it is not successful, I can go to a full fusing. The surgeon was able to look at the X-ray and show where the original injury was ... and roughly how long ago it happened. He showed where the current pain is coming from and explained how the problem will degenerate if no action is taken.
It will take about 6 months to fully heal and I will have a cast on the wrist for about 6 weeks.
Oh and the Lovan experiment?.... it seems to be confirming my suspicion ... Kaylia has been less 'nagging' and more cheerful yesterday and today. I'll continue the trial.
Wednesday, April 13, 2011
#225 Wednesday 13 April 2011
It's an hour before school time ... so it's cuddle time while watching DVDs. Naomi has left for uni a while ago. Kaylia obviously likes this time .... I have to write with her lounging all over me!
Today I've reduced the Lovan by 40% to test whether the previous dose has been too high and producing some symptoms of excess seratonin .... agitation and elevated temperature. If she show less "nagging" behaviour, this may be the case. The nagging can also be a routine that she has absorbed .... so it wouldn't change.
A little later: interrupted by a request for "slee" .... after some trial and error, I worked out that she meant grilled cheese on vegemite toast. We've been having this as a weekend treat lately and it's apparently become a favourite!
This illustrates the language dilemna ... do we give her speech therapy or behaviour therapy ... costs dictate that doing both therapies would mean that neither one will be done enough to be really effective ....
(interrupted by a request "ah wa u mo" "I want some more.")
Which to do? Speech without being able to think isn't good .... behaviour without speech is a problem ....
(... another request for more!)
- Posted using BlogPress from my iPad
Today I've reduced the Lovan by 40% to test whether the previous dose has been too high and producing some symptoms of excess seratonin .... agitation and elevated temperature. If she show less "nagging" behaviour, this may be the case. The nagging can also be a routine that she has absorbed .... so it wouldn't change.
A little later: interrupted by a request for "slee" .... after some trial and error, I worked out that she meant grilled cheese on vegemite toast. We've been having this as a weekend treat lately and it's apparently become a favourite!
This illustrates the language dilemna ... do we give her speech therapy or behaviour therapy ... costs dictate that doing both therapies would mean that neither one will be done enough to be really effective ....
(interrupted by a request "ah wa u mo" "I want some more.")
Which to do? Speech without being able to think isn't good .... behaviour without speech is a problem ....
(... another request for more!)
- Posted using BlogPress from my iPad
Tuesday, April 12, 2011
#224 Tuesday 12 April 2011
Kaylia seems to be over the wog. Last night she slept 12 hours straight!
At this moment we're watching the Wiggles on DVD before school.... she likes this time together and cuddles up. We're so fortunate that Kaylia likes cuddles & closeness ... her disability would be very much harder to cope with if she rejected physical contact & affection.
Two days now till I see the wrist surgeon. Fingers crossed. The rate of deterioration of the problem over the past few months has been very concerning. A few months ago it was painful but I could still do most things .... now I automatically avoid using my right hand if I can avoid it. The iPhone has been a boon ... because it is so small, most actions .... such as typing ... can be done with fingers alone.
At this moment we're watching the Wiggles on DVD before school.... she likes this time together and cuddles up. We're so fortunate that Kaylia likes cuddles & closeness ... her disability would be very much harder to cope with if she rejected physical contact & affection.
Two days now till I see the wrist surgeon. Fingers crossed. The rate of deterioration of the problem over the past few months has been very concerning. A few months ago it was painful but I could still do most things .... now I automatically avoid using my right hand if I can avoid it. The iPhone has been a boon ... because it is so small, most actions .... such as typing ... can be done with fingers alone.
Monday, April 11, 2011
#223 Monday 11 April 2011
The dreaded gastpro struck last night .... poor thing .... the bed was changed several times and I was hanging out washing at midnight! We eventually slept but it seemed like a long ordeal. Needless to say, she is home from school today. I'm not sure what we're doing about work today. What a mess! (boom boom!)
This morning it was "bwoo car" again ..... so it was off to the shop to get gastro supplies. Now we're home again and it's "silva car"! "Off to your room!" I wonder how long it will work for?
Evening: It didn't work for long .... I went down to Midland to manage the office .... and Naomi & Sally were tormented by the nagging-monster! She needed to be home from school but ..... phew!
- Posted using BlogPress from my iPad
Sunday, April 10, 2011
#222 Sunday 10 April 2011
Day of rest?? Not likely! We've done four trips to Midland today .... "bwoo car" .... "silva car" ..... "shopping" .... "white car" .... it never stops. We go down the hill.... get back home and walk in the door ..... "shopping" she says! AAAAaaaaaaaaa!
Anyone want to go for a drive?
This morning I was interviewed by students preparing a documentary about families with children with a disability ... an assignment. I found the interview quite a harrowing and distressing experience ... the questions forced me to remember things that I can forget in the normal day. I could feel the physical effect for a while after.
Both Naomi & I are feeling very tired at present .... the break in Bali next month is like a big carrot dangling in front of us .... we can make it!
Anyone want to go for a drive?
This morning I was interviewed by students preparing a documentary about families with children with a disability ... an assignment. I found the interview quite a harrowing and distressing experience ... the questions forced me to remember things that I can forget in the normal day. I could feel the physical effect for a while after.
Both Naomi & I are feeling very tired at present .... the break in Bali next month is like a big carrot dangling in front of us .... we can make it!
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