#47 Saturday 14th August 2010

Bali day #1
Happy Birthday Tina! (We both have the same birthday.) Tina took us to the airport bright & early and we had an uneventful pre-flight time. The flight was a dream .... Kaylia played iPods for half the flight .. then just went to sleep! Customs in Denpasar was a breeze with our usual VIP bloke waiting for us .... then it was off to Nusa Dua and book into the Novotel. Our room is huge! I had explained about Kaylia ages ago and they allocated us to a suite designed for disabled visitors!
After a settling in swim, we went exploring the resort and found the 'Pause Cafe' - really good for Kaylia - and us! Just the sort of snacks we all like plus delicious milkshakes.
Then it was downtime for Kaylia while Ian went for a walk to expore the surrounding streets. This is a really great area to stay! The resort is good and nearby are all the restaurants, markets, spas etc that you could wish for. We'll be back to this place in future I can see.
We had hoped that Kaylia would allow us to have a special birthday dinner but it was not to be. The resort has a special 'Rijstaffel' meal tonight and it was beautiful food ... but we had to abort halfway through the main course .... [Get up! Walk!] This sort of instruction is usually indicating high anxiety .... so it is wise not to ignore the warning signs. We 'tested the waters' with a few diversionary tactics but the conclusion was that the night was over .... so we're back in our lovely room enjoying DVDs and books.
Thankyou for all the SMS'd birthday wishes.

#46 Thursday 12th August 2010

Well, after decreasing the Risperdal I think there has been a decrease in the headaches so although it is subjective, I think the theory is proved. The mix is not perfect yet but we're getting closer to the right dose. The frustrating thing is that it is difficult to 'get it right' ... and when you do, the success is temporary. Not too long and you're trying to find the right dose again!

Kaylia is doing well at school. She really likes being there and if I hang around for too long after we get there, Kaylia starts telling me to go .... 'Bye ..... Bye!' Her reading seems to be good - she recognises words well ... she can't say them well because the messages get mixed up on the way from brain to lips .... but she knows what the words are.

We leave for Bali in about 36 hours and Kaylia has it sorted ..... Thursday ... Friday .... Saturday - Bali. On previous trips, I've kept a diary on the computer and this time I'll be able to upload the diary to this blog each day .... I'll enjoy that! (Anyone who doesn't enjoy it ... well you don't have to read it!!).

#45 Monday 9th August 2010

Tiwa is home! Kaylee is happy! We're all happy.

Kaylie has had some good nights lately .... she has been having headaches again so I've cut down on the Risperdal (to the pre-headache level) and left the Lovan at the new higher level. I think it's the Risperdal that is producing the headaches ... so we'll see. The higher levels of medicine seemed to be reducing the anxiety a bit but that cannot be at the cost of headaches!