#1357 Saturday 1 October

Wow .... What wild weather!  Its been a day for staying inside next to the fire.  .... and this wild weather will be hitting South Australia in a few days.... coming on top of the REALLY Wild weather that they've already had.

The weather doesn't bother Kaylia fortunately.   Thunder .... lightning .... she hardly notices it.

Naomi is on Skype as I write .... talking to Tom and CC.  They had the usual treatment from Kaylia ... she runs in and has a look .... then she's off.

Today has been one of those days where I really notice her absence of imagination .... she's been needing us to keep her occupied all day.  For a while now she has been able to occupy herself .... but not today.

10pm .... Its been very hard work to get her to sleep tonight .... The process began at 6 .... then she had a long period of pain upset ..... and after the 10pm wee run, I hope she sleeps.  I'll tell you the result tomorrow.

#1356 Thursday 29 September

She's had a big day today ..... Joe and Ellie ran her ragged with Whiteman Park, trip to Fremantle .... plus swimming!   She was worn out at bedtime and there were lots of tears.  She's asleep now and she can sleep in tomorrow.

She has therapy again in the morning.

#1355 Tuesday 27 September

Kaylia has therapy this morning.... we keep it up during the school holidays if at all possible.  Kaylia loves therapy and lives the routine.   A couple of days ago, she wanted "pictures" .... which is when she goes through all her favourite images and videos on the computer.  In there there's a lot of videos of her early days of therapy and its always good to be reminded of just how far she has progressed.

#1354 Monday 26 September

We all went on the train to the Royal Show today.  Kaylia was excellent!  Even when we found out that she wasn't allowed in the big bubbles.  It was all she wanted .... The ride has the child getting inside a large inflated ball .... and the rolling round a large pool .... but she's now too big.  Very sad.

It was a good time.

It was strange on way home .... most of the way, we were to only people on the train!

Now we're home again ....   Kaylia has a new hilarious behaviour.  Often she does something that makes us laugh ..... and when we laugh, she laughs too .... I wish we could catch it on video.

#1353 Sunday 25 September

She had a "hyper attack" last night .... she giggled and wiggled and giggled and wiggled from about 5 pm till 9pm when she finally went to sleep!    It was possibly from not eating enough during the day. We tried to bribe her to eat some tea .... but the lure of a trip to the icecream shop wasn't enough to get her to eat. She is still very overweight so we're not too worried yet ..... but we'll need to plan some strategy for a possible future where she needs to eat!

Today we will go and visit Maxine ..... maybe try out her new chair lift!  Maxine has had one installed to allow her to access to bottom part of her house.

Ouch!! She's just kneed me in the cheekbone ....  
Sleep in this morning is a very active affair!   We tried to persuade her to go downstairs and play .... No joy.  This got me pondering the nature of "play" .... its the old problem of imagination.  Her lack of imagination means that she has no way of playing.  When I remember my childhood play, it was largely an imaginary world.

Its hard to imagine a world without imagination .... where "what you see is what you get" ..... nothing else.

Evening
The day ended up going on a chocolate factory and winery crawl.... of course it HAD to be done to show Joe and Ellie!  During this trip I had a bad leg pain attack ... and after taking a dose of strong painkillers, I dozed the rest of the day .... with Kaylia pestering for tickles a lot of the time.