Saturday, January 25, 2014

#800 Saturday 25 January

At bed time last night we were doing our usual thing of being upstairs in the bedroom ....Kaylia watching her DVDs and Naomi & I on our respective  iThings .... and once again I couldn't help marveling at how happy Kaylia is.  She sits on the bed just looking from the DVD to Naomi ... then to me ... then back to the DVD .... and there's a great big smile on her face.

I'm writing this at 5am .... I crashed at 7:30pm last night so when Kaylia woke at 2am for a loo run ... I was wide awake!  Note! Kaylia woke herself!  She woke me to tell me "Toilet!"  This is progress.
So ... since 2am, I've been downstairs doing reports, banking, playing with PCs ... general undisturbed "me" time.  It's not a bad arrangement .... I go back upstairs when it's time to start the morning routine.

Friday, January 24, 2014

#799 Friday 24 January

I'm writing this using  a Toshba 8" tablet running Windows 8.1 ..... it works a treat and replicates my main computer ....... so I can just about have my office in my pocket!  ... and the beauty of eBay is that I can sell a couple of old laptops (even the non-functional ones) to pay for it!

So what does this have to do with Kaylia?  Lately she has become very keen to watch videos of her past birthdays and a school dance when she was in pre-school.  I'll be able to put them on the tablet for her  ...... much better than having to go downstairs  to the office to watch them.

Thursday, January 23, 2014

#798 Thursday 23 January

Lara has found a new source of water fun for Kaylia ..... there's a new water-park opened in Ellenbrook and Kaylia had a good time there yesterday.  
It has occurred to me that the nagging problem has diminished in the past few days .... and last week was the full moon. I wonder whether the full moon is coinciding with a increase in anxiety levels ..... this would explain some of the behavior changes we see at that time.  To test this we would need a method to measure anxiety level.  I'll have to ponder that one.

Evening:  We also realized today that another great improvement has crept up on us ..... not that long ago, as soon as she had finished eating her breakfast.... nagging would begin. Now ... nothing! We can actually have our breakfast in peace .... she just goes off and plays.  It's amazing!

Tuesday, January 21, 2014

#797 Tuesday 21 January

I had a beaut email from a friend today .... pointing me to a link about bed wetting.  Unfortunately the information was about the normal bed wetting situation .... ours is made more difficult by the Risperdal which makes her sleep too deeply to wake in time to go to the loo.  Left to herself, she doesn't wake till hours after the deed!  Ce la vie.

It's hot again today.  Yesterday afternoon there was a fire nearby .... it was caught by the "firies" quickly and didn't spread far.  While they were working, the helicopters and planes were very noisy.
Kaylia is outside in her "bath" .... it's very pleasant for her.  This morning she wanted "hose" time at 7am!

Monday, January 20, 2014

#796 Monday 20 January

We haven't find the perfect solution to "nagging" .... it's improving as the anxiety improves but till the anxiety is completely controlled, the nagging will probably continue.   In the news today was a report on a study into how 'ecstacy' affects the brain .... and the findings may be very useful in the treatment of anxiety. A new answer to the problem will be welcome.

Today has been hot .... and the bee sting on the sole of her foot is really bothering her.

Sunday, January 19, 2014

#795 Sunday 19 January

At Aunty Moo's
She has a good time there ... they have "cable" and she loves being able to choose the program.

3pm. It's been a stressful few hours ..... We were in a situation which broke her routine .... plus she had a bee sting on her foot from yesterday .... it was all too much for her.   When it's too much for her, it's too much for us too.  We ran for home and now she's under the hose .... her world is back on track .... and we can relax again.
Today shows that the experimental reduction in Lovan dose might be tolerable in a low stress situation .... but it won't work when she's back at school.   The broken routine produced extra anxiety which she couldn't handle.