It is so good to see how happy Kaylia is at present. She has an expression ".... happy feet!" (from the movie) She will just come out with it and, from the context and her behaviour, she clearly means that she is telling us that she's feeling happy.
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Last night Naomi was singing to her and Kaylia began singing too. Then she began singing a different song ... a lullaby. She clearly thought it was bed time as she waited till Naomi sang it and then went off to bed!
As you can see, we are beginning to experience some rewards for the years of hard work ..... still a long way to go but she is such a delight at times.
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Evening
During therapy Kaylia was being asked "Where do you go when you're hungry?" (meaning the kitchen). .... she says "....to Daddy!"
Friday, October 19, 2012
Thursday, October 18, 2012
#729 Thursday 18 October
Naomi's birthday today! Happy Birthday!
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We came downstairs to find a surprise awaiting her ..... a special breakfast! .... complete with cake and flowers! Well done Zoe and AJ.
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Tonight it will be a celebration outing to Nandos .... believe it or not, this is a special treat!
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We came downstairs to find a surprise awaiting her ..... a special breakfast! .... complete with cake and flowers! Well done Zoe and AJ.
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Tonight it will be a celebration outing to Nandos .... believe it or not, this is a special treat!
Wednesday, October 17, 2012
#728 Wednesday 17 October
When Kaylia was in pain on Monday, we were reminded of the bad meltdowns that we used to get years ago .... now I'm thinking ... "How many of those bad meltdowns were the result of pain from some cause? Did she have constipation then?". I recall though that then .... as now..... we could recognize a different 'timbre' to the crying ... and we used to give her pain killers.
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This whole inability to communicate ..... it's a terrible thing.
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On a different front .... did you see the article about Aspergers in the UK? A guy who 'hacked' the US defense computers 10 years ago has been facing extradition to the US ... his disability has been recognized and the extradition stopped as a result.
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...... at the office, there's a small hole in the wall outside .... some birds have made it their home!
..... and while we're looking at photos ... some flowers around the home and office.
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This whole inability to communicate ..... it's a terrible thing.
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On a different front .... did you see the article about Aspergers in the UK? A guy who 'hacked' the US defense computers 10 years ago has been facing extradition to the US ... his disability has been recognized and the extradition stopped as a result.
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...... at the office, there's a small hole in the wall outside .... some birds have made it their home!
..... and while we're looking at photos ... some flowers around the home and office.
Tuesday, October 16, 2012
#727 Tuesday 16 October
"Gool dday". She will be so excited to be going back to school. I expect that the car ride will be full of a giggling, jiggling Kaylia! When we arrive at school she will want to run from the car to the classroom.
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Evening
It turned out that she was in a very quiet mood ..... very clingy and cuddly. After school we took her for a follow up abdominal x-ray to see if there has been any progress on clearing the constipated mass in her intestines .... there's still a large problem and the efforts to clear it will continue.
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Evening
It turned out that she was in a very quiet mood ..... very clingy and cuddly. After school we took her for a follow up abdominal x-ray to see if there has been any progress on clearing the constipated mass in her intestines .... there's still a large problem and the efforts to clear it will continue.
Monday, October 15, 2012
#726 Monday 15 October
It's the last day of the school holidays ..... "Gool morra". I think that Kaylia has enjoyed the two weeks .... thanks to AJ and Zoe!! They have kept her going the whole time .... many swimming trips to the pool or the lake.
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I think the acceleration in her progress is largely due to having AJ and Zoe 'on her case' so much. (Thankyou!!)
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Evening
The day descended to the depths around 1pm ..... she had a bout of pain from the constipation. The pain was severe ... she was sitting on the loo screaming. Pain killer and an enema did nothing so I rang the Health Direct line. They said she needed immediate attention .... so itwas off to hospital at about 1:30pm. As soon as we left home she perked up and was happy again! After hours waiting in the emergency department, there was nothing for the staff to see and we were sent home with another suppository!
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By tea-time, the suppository had done its work well and she was happy ...... we persuade her to accept the idignity by a reward at the end of the process.
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The afternoon showed that the constipation issue is still a real problem. It's a bummer! (Yuk Yuk)
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I think the acceleration in her progress is largely due to having AJ and Zoe 'on her case' so much. (Thankyou!!)
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Evening
The day descended to the depths around 1pm ..... she had a bout of pain from the constipation. The pain was severe ... she was sitting on the loo screaming. Pain killer and an enema did nothing so I rang the Health Direct line. They said she needed immediate attention .... so itwas off to hospital at about 1:30pm. As soon as we left home she perked up and was happy again! After hours waiting in the emergency department, there was nothing for the staff to see and we were sent home with another suppository!
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By tea-time, the suppository had done its work well and she was happy ...... we persuade her to accept the idignity by a reward at the end of the process.
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The afternoon showed that the constipation issue is still a real problem. It's a bummer! (Yuk Yuk)
Sunday, October 14, 2012
#725 Sunday 14 October
A milestone event! Last night Kaylia took herself off to her own room for bed and stayed there till 4am! She had a wet bed at that point ..... but it was still an important step! It was so nice to not have to fight for bed space!
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Kaylia's negotiating continues to delight us. This morning we outlined the plan to her ... and she was not satisfied. She added her own item to the list and began negotiating to fit it into the shedule!
More and more, we're seeing her using socially appropriate language ..... without being prompted.
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Last night Naomi and I went out to see friends .... Zoe and AJ took Kaylia down to the Darlington oval for the annual 'bonfire'. Kaylia was really excited.
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Kaylia's negotiating continues to delight us. This morning we outlined the plan to her ... and she was not satisfied. She added her own item to the list and began negotiating to fit it into the shedule!
More and more, we're seeing her using socially appropriate language ..... without being prompted.
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Last night Naomi and I went out to see friends .... Zoe and AJ took Kaylia down to the Darlington oval for the annual 'bonfire'. Kaylia was really excited.
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