Friday, March 9, 2018

#1780 Friday 9 March

Kaylia has just arrived home from school .... her first priority is to strip off her back brace and her uniform to get cool.  Then she wants me to reassure her that she has school on Monday!

Then it's snuggle time and stim time..... usually this is iPhone.... Youtube.

Thursday, March 8, 2018

#1779 Thursday 8 March

One of the beaut things that Kaylia is taught at school is how to cook.....  teaching her to be independent.  And of course she gets to eat it too.  Today she made scrambled eggs with bacon.....

Plus she ate her school lunch as well!  I think a growth spurt is a coming.  Golly she's going to be tall.

Tuesday, March 6, 2018

#1778 Tuesday 6 March

Poor thing ... she's not happy tonight.  Something is really bothering her and we can't work it out.  She's crying a lot and doesn't want us with her ..... but we insist that we will stay with her till she is calm and happy.  It's not nice when we can't see the problem and when she can't tell us.

We have a sort of checklist to go through .... and when none of that works, we just have to try and ride it out with her.  It may just be tiredness .... and if it's that, then she will go to sleep soon.

........
About an hour later and she's happy again.

Sunday, March 4, 2018

#1777 Sunday 4 March

It's 9am.... Kaylia is snuggled between Naomi and I while we have a sleep in.  She's already had an hour of bathtub time and now she's muttering about "school on Tuesday".

Today will be pancakes followed by a drive.  

Later:  It was a short drive followed by a long rest.  Kaylia is very happy to amuse herself when she knows that we are close by.  She will come out of her room every now and then to check that we are there and that she has school on Tuesday .... then she goes back into her room.



I'm finding that my energy levels are very low and so I checked for medication side effects .... and found that tiredness is a side effect of every medication that I take!  Hmmm .... I'll have to think about that .... but I don't have the energy think about it.