These bad nights are getting monotonous! Thursday and Friday were both bad nights (after a couple of good nights). Last night was another one where she was so wired that once she woke (at 2am) she just stayed awake. She spends the night reading her books and watching DVD's. Some positives are that she is responding to the 1-2-3 warnings and modifying her behaviour. She also was very responsive to having the 'program' for the night explained. We just need to work out what it is that is 'winding her up'.
It could be not enough medication ... or too much medication .... or going to bed too early ... or temperature regulation .... or external noises (rain / airconditioners).
We're going for a car drive today .... to Hyden to see Wave Rock.
Saturday, July 10, 2010
Wednesday, July 7, 2010
#33 Wednesday 7th July 2010
The sleep saga continues ..... Monday was bad night #5 ... followed by a really good Tuesday night! So far it is not clear what is making the difference. One small possibility last night was that she had had a rash during the day (which seems to be a reaction to a new nightie) and we'd given her an anti-histamine at bed time .... this may have made her a little more sleepy than usual. She hasn't had it tonight so we will wait and see.
The slight increase in Lovan (since Sunday) has made a reduction in 'stimmy' behaviour. It is possible that this has also made a difference to sleep .... less anxiety = better sleep?
It's school holiday time and Kaylia is enjoying her time .... today she spent the morning with Kym then the afternoon at Garvey Park with Linda & Anni.
The slight increase in Lovan (since Sunday) has made a reduction in 'stimmy' behaviour. It is possible that this has also made a difference to sleep .... less anxiety = better sleep?
It's school holiday time and Kaylia is enjoying her time .... today she spent the morning with Kym then the afternoon at Garvey Park with Linda & Anni.
Monday, July 5, 2010
#32 Monday 5th July 2010
She's done it again! Last night was another bad one ... this makes 4 in a row. We tried increasing the Melatonin but it had no effect. Fortunately its now school holidays so she can sleep in after a bad night. And after sleeping in she is always a really happy child.
I've had some lovely emails from people concerned about Kaylia being to cold at night ... and I realised that my writing has conveyed the wrong idea! The problem is not that she is too cold ... it is that she is too hot! So she kicks off the coverings in her sleep ... and I was wondering if she was waking because she then got cold after being too hot! She is really just like me ... she is like a natural hot-water bottle and if she has too many blankets, she overheats. She needs to sleep with light coverings ... apparently even less than me!
I've had some lovely emails from people concerned about Kaylia being to cold at night ... and I realised that my writing has conveyed the wrong idea! The problem is not that she is too cold ... it is that she is too hot! So she kicks off the coverings in her sleep ... and I was wondering if she was waking because she then got cold after being too hot! She is really just like me ... she is like a natural hot-water bottle and if she has too many blankets, she overheats. She needs to sleep with light coverings ... apparently even less than me!
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