#1913 Saturday 10 November

Today was one of those days that remind me that even though Kaylia has come a looonnng way .... and improved so much ..... she is not out of the woods yet!  She had a really good day with Casey and as usual she had bath time from 12 to 1pm ..... and then her voice showed that "sound" .... the change in tone that says that she is heading into meltdown.  So we dosed her with the usual fixes and adopted the soothing strategies ...... the strategies eventually worked but it was a battle.  Kaylia still needs careful management at times.

#1912 Thursday 8 November

It's 4pm ...... as usual, as soon as the car pulled into the driveway, Kaylia has rushed inside and headed for "BUBBLE BATH!!"  She loves it.  Now ... half an hour later she is crooning away very happily.  When she croons like this we can very accurately tell what her mood is.  Now she is happy .... but if she becomes anxious or in pain, we hear the change in the sound immediately.  It's a good "Kaylia barometer"!


This evening while having tea, the phone rang ....... "Hello, this is a short survey from the Federal Government......."  !!!!!!!  Not only does our wonderful government do nothing to control phone spam and scam,  the government does it too!

#1911 Tuesday 6 November

Kaylia often comes home with scrapes and bruises .... with her lack of sensory reception, she doesn't really notice them.  Today she came out of school with a big red mark on her forehead.  Asked "Does it hurt?" she says yes.

Then Casey noticed similar redness on her hands ..... touching the redness revealed that it was paint!  ..... and the forehead was paint too!  Kaylia is a fraud.....  but a fraud of the most endearing sort.

#1910 Monday 5 November

It's Guy Fawkes night!  I remember.....  as a child I used to collect crackers in the weeks leading up to this night.  It was a BIG night for me!  .... and then they went and banned crackers.  So sad.

Kaylia continues her merry way .... every night she is talking about school the next day .... and then the talk always turns to Bali!  Now we can tell her that she is going to Bali next month!  .... and we can talk about her favourite Bali features .... the swimming pool, the bakery, the shops.

Yesterday we had a little gathering for our work colleagues ..... Kaylia was well behaved and fitted in well.