Saturday, June 9, 2012

#607 Saturday 9 June

I'm at the weekly "social Skills" session .... it's my social fix! I love the talking and sharing with parents while the class is on.
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You may recall me talking of our current "diet" (frozen meals = portion control) .... for me it's working! I'm down well under 100kg for the first time in about 10 years! This is good news for diabetes management.
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I'm off to Bali in a few hours ..... and Kaylia is not happy. She sees the packed bag and now the song is ".... Bali, Bali!" She knows that I'm going and she wants to go too. Oh boy.

Friday, June 8, 2012

#606 Friday 8 June

Kaylia is in pain tonight .... we can't tell what it is but she's not happy. It doesn't seem to be ears or head .... it may be tummy or botty .... we'll watch tonight and it may be visit to the doctor tomorrow. It's so hard when she can't tell us.
Later: After some honey on toast and a banana, she's feeling much better and she's settling to sleep.




Thursday, June 7, 2012

#605 Thursday 7 June

A wintry day .... Cold and wet. (I think I might have to go to Bali!)

Last night we tried step one of the process of persuading Kaylia to sleep in her own bed. We've set up the trundle bed next to her bed so one of us can sleep downstairs. Last night I took her down in the middle of the night and she slept there till close to shower time .... It was a good start and it gave Naomi a few hours of comfortable sleep .... we'll continue the process.

My iPhone toy collection has expanded ..... I now have a holder which allows the phone to be mounted on a tripod. This allows much better photos when using the 400mm lens at maximum zoom. I'll include some example shots later.

Wednesday, June 6, 2012

#604 Wednesday 6 June

Teddy's had a haircut today .....




This is his Bali Bintang jacket.
Wednesday is frozen meal delivery day ... some come with dry ice ....




.... which can be fun.
It was a bad night last night. No one slept well .... I was up a lot, Kaylia had a bad night and Naomi had a bad night as well.

Monday, June 4, 2012

#603 Monday 4 June

It's a day off .... a public holiday ..... This means that we have to work harder to keep Kaylia on an even keel .... to keep her from becoming upset because her routine has been disrupted. She's been cycling through a range of possible things to do .... which either we can't do (for various reasons) or for which we've "run out of puff". Right now my body is saying ... sleeeep, sleeeeep ..... but I can't.

Imagine driving in my current state.

Sunday, June 3, 2012

#602 Sunday 3 June






Everyone wants to feel that they are loved. So make it a goal to tell everyone in your circle how you feel about them today.




(Remember ... This is to make them feel good ... it's not in the hope of any reward.)
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Don't do it like this!




oh and remember ..... love is not a finite resource! Being in love with one person doesn't reduce the amount of love you have available to give to another.
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Be wasteful in your loving!
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TYFLTMS.
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Evening
Kaylia has a new set of dingle-dangles.



There was a "significant event" this afternoon .....
In therapy she has been working on 'Where is ....', 'What's that?'. and so on.
This afternoon she had been eating a muffin with yummy icing .... just the icing. She wanted another. When told that she couldn't till she had eaten the cake as well as the icing, she looked at Naomi and asked .... "Why's that?". It was completely unprompted and in context .... It shows a very much higher level of thought process than we have seen to date! The years of therapy as really paying off.