So far the theory has not been dis-proved! There are too many variables in the equations for me to say that it has been proved just yet .... but after 3 days on the higher dose of Lovan, she slept well again - so maybe.
Today she is on a play-date at her favourite place .... she was so happy to be there when we arrived .... when I went back 2 hours later to collect her, she tried to push me out the door! She wanted to stay! So I rearranged things so she could have more time.
This confirms something I read in a book written by an adult auty .... he said that his "stand-offish", unsociable behaviours were not because he didn't want social contact ... it was just that he didn't know how to behave. Kaylia obviously wants the social contact with her friends ... she just doesn't have the "social language" so that she can communicate in a way that we see as 'normal'.
Saturday, September 4, 2010
Thursday, September 2, 2010
Thursday 2 Sept 2010
If my theory is correct, then the effect of the increase in Lovan has not kicked in yet .... last night was the second night that she was up at 3am. She is very happy about it all and she goes down to watch a DVD .... maybe she is just a night owl!
Today I completed the process of selling some of my workshop equipment (lathe & thicknesser) and used the money to buy an iPad .... Kaylia was entranced to see the videos (that she knows from the iPod) on the iPad at about eight times the size! The whole Apple iPod/iPad scenario is excellent for Kaylia .... it gives us something that she is able to manage herself ... and it keeps her occupied for ages. .... and they are great for adults too!
Today I completed the process of selling some of my workshop equipment (lathe & thicknesser) and used the money to buy an iPad .... Kaylia was entranced to see the videos (that she knows from the iPod) on the iPad at about eight times the size! The whole Apple iPod/iPad scenario is excellent for Kaylia .... it gives us something that she is able to manage herself ... and it keeps her occupied for ages. .... and they are great for adults too!
Wednesday, September 1, 2010
Wednesday 1st September 2010
September already!
I'm pondering a theory that the nights of poor sleep are being partly caused by poor medication level ... if she wakes, her mind is whirling so much that she can't settle. For the past 10 nights, she has slept well - and stimming level has been good. Then last night, she was up at 3am ... and this is after a day where she had a toilet accident that appears to be from being lost in 'stimmy-land'. It also follows from our 'experiment' to see whether Risperdal could be removed.
We'll need to assess whether high stim level is linked to poor sleep.
Lovan has been increased to 1.75 tablets (from 1.4 tablets) to see if it has an effect. If I'm right, she will sleep better tonight.
I'm pondering a theory that the nights of poor sleep are being partly caused by poor medication level ... if she wakes, her mind is whirling so much that she can't settle. For the past 10 nights, she has slept well - and stimming level has been good. Then last night, she was up at 3am ... and this is after a day where she had a toilet accident that appears to be from being lost in 'stimmy-land'. It also follows from our 'experiment' to see whether Risperdal could be removed.
We'll need to assess whether high stim level is linked to poor sleep.
Lovan has been increased to 1.75 tablets (from 1.4 tablets) to see if it has an effect. If I'm right, she will sleep better tonight.
Monday, August 30, 2010
Monday 30th August 2010
Well ... that was fun! (NOT) .... we found out that we can't take her off the Risperdal! The Risperdal was reduced from 0.3ml to 0.2ml on Saturday and 0.1ml on Sunday. By Saturday evening she was getting worried about where her toys were being placed ... and by Sunday noon, she was in very stimmy behaviours and becoming hard to manage. So by 3pm, we stopped the experiment and topped her dose back up to 0.3ml. By bed time, she was better and this morning, she is back to the current version of normal.
This shows that Lovan and Risperdal are either :-
a) working on different problems so that the lack of either will cause a particular problem to occur .... or
b) working together so that they are needed in combination to deal with stimmy / anxiety issues.
I think it probably shows that stimming and anxiety are two separate problems.
This shows that Lovan and Risperdal are either :-
a) working on different problems so that the lack of either will cause a particular problem to occur .... or
b) working together so that they are needed in combination to deal with stimmy / anxiety issues.
I think it probably shows that stimming and anxiety are two separate problems.
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