Monday, June 18, 2018

#1827 Monday 18 June

Once again Kaylia has come home from school ... excited and happy .....

Now .... 5:30pm .... she is in the bath with a mountain of bubbles!  She's been chortling and singing for 2 hours now.  Hopefully she will hop out soon so we can all have some tea!




In the news today .... another death on Manus Island.  Shame Australia Shame!!

If you share my feeling of shame at Australia's collective guilt for the treatment of the people that Australia  imprisons without trial and without hope ..... sign the petition to our federal senators.

Sign the petition to the Senate

Saturday, June 16, 2018

#1826 Saturday 16 June

Gee .... days have slipped by without a blog entry!  What has been happening?

While Naomi has been away, life at home has been a little more hectic I s'pose ..... Naomi came home Wednesday and Kaylia was very happy to see mummy after school then ... it was story time before the dust had settled!

Then Thursday and Friday were business staff pay preparation and processing for me ..... this is still my task ..... the person we have employed to take over the accounts from me is doing a good job but it will take a while before the pay process can be handed over.  This will come eventually.

Today I had some tractor time .... a neighbor wanted a hand with preparing a part of his yard for lawn.  The area had to be leveled and then fresh soil spread over so that it was ready for grass to be planted.    It was a little worrying because he has a young boy who was fascinated by the tractor ...... and I had to keep one eye on the child because the father was not keeping the child as far from the work as I would have liked.

Kaylia is still fixated on when her next day at school will be!  She is also trying to get us to talk about going to Bali at Christmas ..... but we know from experience that we must keep away from that.  Our tactic is to tell her
"No .... we will talk about Bali in November. 
How many months to November?  July .... August ... September .... October .... and then November!"

Monday, June 11, 2018

#1825 Monday 11 June





School excursion to the Maritime Museum in Fremantle














Kaylia seemed to enjoy the day ..... usually when I ask her questions, she gives the impression that she doesn't know what you're talking about and she's not really interested ...... but when I talked to her about today, she knew that she'd been to the museum ... and she responded to comments about pirates.






Tonight when Naomi Skyped from the villa, Kaylia joined in.  She was happy to see mummy but once she had seen her and made sure that she was still around, Kaylia was off again .... back to her room.

Saturday, June 9, 2018

#1824 Saturday 9 June

It's 5pm and she's in the bath.... for the third time today!  We ponder the wisdom of consuming that much water...   but she's so happy!  She loves her bath time.

Naomi goes to the villa for 3 days tomorrow night to make sure that the maintenance is being kept up to standard.

Thursday, June 7, 2018

#1823 Thursday 7 June



This is Kaylia (as No 4) .... and if you dare to interrupt her iPhone time, you will probably be told to "GO!"

Wednesday, June 6, 2018

#1822 Wednesday 6 June

Kaylia is going to see "Dr Steve" today .... he makes her back brace and does maintenance on the brace. Currently the straps at the back of the brace are too short and so the brace is too tight for her.  After the brace has been fixed it should be more comfortable.   Kaylia has been wearing the brace since November 2016 ...... when the fitting is correct, she really likes to wear the brace.  I think it relieves the strain of her curved spine.  She will need to wear the brace for a while yet.


Monica has joined us as Kaylia's new aupair.  Monica is from the UK and she's training to be a vet.

Monday, June 4, 2018

#1821 Monday 4 June


Well .....  since the last post that talked about the NDIS tactics to prevent people receiving benefits,  the system has struck at Kaylia!

 On Wednesday the NDIS conducted Kaylia's annual review .... and wonder of wonders!  According to NDIS she is getting better!  She no longer has severe autism!  .... she has improved from a level 3 to a level 2 .......

 "oh ... she doesn't need as much support any more does she?"   At this stage the funding has only dropped by 7% ..... but the writing is on the wall.



That power is called "Politician"

Isn't it wonderful the way our magnificent .... caring .... benevolent ... government can wave it's miraculous magic wand and cure our disabilities with the stroke of a pen!