Thanks to the people emailing .... it's great to know that you're out there supprting us!
Today Kaylia is still in 'high anxiety mode' .... school reports that she was stimmy and when she came home we had a hard job calming her down so she could start therapy. She gets very determined that she is going to go in the car .... and at 6 years old, she is quite sure that she can make us do whatever she wants!
Last night was another bad one ... she woke at 3 am and was then awake for the rest of the night. This time, she didn't go back to sleep at all! Tonight we tried increasing the 'sleepy drug' and we'll see if it can keep her asleep through the night.
Until we can improve her sleeping, we will have difficulty controlling the anxiety and 'stimmy-ness' ... so this is an important task.
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