You know, one of the hardest things to deal with is 'partial communication' ..... when she has enough language to know how to express her wants .... but not enough to understand delay ... or to understand that she can't have it. During the day, we're able to use to "no nagging" concept with time out after three .... but at night when you're half asleep ( and struggling to sleep again) it is very hard to use such tools.
At that time it becomes an endurance match .... who will last longest! Resentment is hard to avoid .... it is hard to remain in 'adult dealing with child' mode. I'm writing this at 5am after being awake since 2am. K has a sore tummy with the gastro and as a result she's wide awake.
We had a survey on the Federal autism early intervention assistance program yesterday ...(we were able to use it last year to pay for much of Kaylia's therapy ..... it was interesting to fill it in and tell them that it's a great idea ... just not enough .... that despite the assistance program, we still have to re-mortgage the house to pay for therapy ...
The problem is that the monetary benefits ( of solutions applied now ) don't occur till several terms of government have passed .... there's no short term political pay off! .... and democracy doesn't work for long term gain .... as we can see with the climate inaction!
Later (evening) Today I had a cortisone injection in my wrist .... it was one of the most painful things I have ever experienced. If it doesn't do wonderful things, it will be the last time I have one! The ultrasound done (while finding where to inject) showed that my wrist is a mess .... rough spots and bone spurs abound.
- Posted by the Kaylee Blogger
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