40 days to go
Today will be busy!
Anni & Barbara will arrive at some point - though we don't know when! I have an appointment at midday for the doctor to look at my toe .... I need to talk to the city council about business planning ...... there are final Christmas gifts to find ...... and through all of this we have to manage Kaylia's current high anxiety .....
We have to put first priority on Kaylee and everything else must fall into place around her ..... if Kaylia gets out of control, it becomes much, much harder to get anything else done.
Yesterday was a good Kaylee day ... although tired, she stayed on top till tea time ... then she lost it. We could see that she was very tired again ..... but she wouldn't let go and sleep!
Check out this video on YouTube: Autism Every Day - 7 minute version
http://www.youtube.com/watch?v=FDMMwG7RrFQ&feature=youtube_gdata_player
This shows what it's like to be a parent of a child who has autism ..... much of it is very real for Naomi & I ..... my impression is that Kaylia's autism is actually worse (than most of the children in the video) but she has made more progress in recovering ..... I feel that we're coping better than most.
Today, we were noticing how good it feels that Kaylia is actually using names when trying to get our attention.
[The blog will get lots of writing today .... I've just had the ingrown toe nail fixed ...so I have to keep my foot as high as possible ... good for writing!]
Another thing that caught our attention was that when Anni was about to go out shopping, Kaylia said "NO!" ..... this is the first time she has demonstrated awareness of someone leaving ..... normally there is no reaction at all. We had to reassure her that Anni would be coming back .... then it was OK. This is quite a significant development and we realized that there have actually been several small but significant developments in the past few weeks & months.
- Posted by the Kaylee Blogger
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