Monday, September 25, 2017

#1655 Monday 25 September

It's a public holiday today..... Naomi gets a chance to rest..... so at 6am I'm downstairs with Kaylia..... she's on her iPhone.  The aim is to delay going upstairs as long as possible!  Kaylia has just put her face in mine..... she likes sleep in time.... it means lots of tickles and lots of stories about school, Bali and Busselton!

6pm   it's been a day of drives..... tickles..... bath..... drive...... and through it all, trying to control her looping.  It's hard work.  Most of it is standard routine for holidays..... but the looping is a new and unwelcome element.

Tomorrow she will have therapy in the morning and then in the afternoon we'll go over to Fiona Stanley Hospital to have her new brace adjusted so that it's more comfortable.

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