Last night we tried a new idea ... the medicine to counteract insomnia was not working in the middle of the night .... so we gave Kaylia a smaller dose at bedtime and then a second dose when she started to wake up at around 2am. She went straight back to sleep and slept through to 7am. It worked! We think this is the first full night of sleep she has had in about 6 weeks. And of course, this is the closest we have come to a full night's slep in that time too!
The "cocktail" of medicines that she is currently on seems to be bringing a good result ..... reduced stimming without headaches or the insatiable appetite! She is a happy girl at present - although she is having periods of frustration where she tries to communicate with us ..... and we can't understand her! Her latest is "PECKHAR" ????
Linda Verachtert joined Team Kaylee yesterday as Kaylia's new aupair. Linda is from the Netherlands and is an experienced social trainer. She has been travelling for 18 months so far. Next weekend, Sophie will fly to Broome to start the rest of her travels.
I have written a small handbook that I call "An Operators Manual for Kaylia" .... it is full of information & suggestions for people who have a role in caring for Kaylia ...... if you would like a copy, email me and I'll send it to you.
It's Tuesday night and this means that Naomi & I can escape for a couple of hours!
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