Sunday, July 17, 2011

#319 Sunday 17 July

Barwee today! After a dry night we were up and off to the airport. It was the quietest departure we've ever had .... the terminal was almost deserted and we whisked through passports and customs with no hassles. The x-ray machine didn't even beep at all the metalwork in my wrist! Kaylia is clearly excited in anticipation of the trip.

After her last therapy review, we are concentrating on trying to get her to talk about things that are not related to wants/needs ... so the excitement of the time in Bali is a great topic. As one of the items for setting up the villa, I'll look for a small printer to leave in the villa ... This will mean that Kaylia can write stories about her time ... We can email the stories home and she can use them at school. With Kaylia's growing ability to use the computer I think it will be time soon to set up her own email address. I can imagine her writing to a friend via email. (Wow ... What a long way she's come in the last couple of years!)

11:00am After an hour and a half it's time for some calming ... melatonin and painstop. She's getting noisy ... seems to be boredom rather than anxiety. If the painstop doesn't slow her down, we'll try the new tool.

I've had a half hour session with the TENS machine on my wrist ... an amazing thing ... it generates electrical impulses and I'd thought they would be just random impulses ... but each separate burst of stimuli activates a different set of muscles! So the impulses are not random. They produce a hand rotate, then a figure wiggle, then a hand clench .... then something else .... then the sequences begins again. It reduces the pain during the session and the arm muscles are more relaxed after.

(I wrote all the above on the plane.... But I did it on the iPad! ... and it's not easy to transfer! It had to wait 2 days.)
It's 7:30pm .... we've had swims in the pool.... been to get donuts ... been for a walk (this was a furphy - she actually wanted food so we ended up at the cafe for tea.) The new furniture arrived ... and we made a bad mistake! We had moved room and this messed up Kaylia's routine big time .... she's only had 4 nights in the other room but already that room is firmly in her mind as "the room". The change of room produced a BIG meltdown .... bad for Kaylia and bad for us too. The question is ... Do we change back to appease the monster? Or do we tough it out to change her routine?

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