Sunday, December 23, 2012

#784 Sunday 23 December

Yesterday we managed to wear ourselves out by painting a room ... then Kaylia was struck by 'transition woes' .... she has trouble handling changes in circumstances ... in this case the change from  school to holiday.  Last night she was upset that she couldn't go to school the next day.  Then she had a bad night.  She woke at 4 am and that was it ... she was able to manage herself till 6am but then she wanted the day to start!
To have a bad night after tiring ourselves out with the painting ..... phew!  It's hard to cope today.

The change in medication has been interesting.  It's very clear that the Risperdal is essential for Kaylia's learning.  After two weeks with out it, she has reverted to being highly stimmy .... in some ways this makes her a bit easier to manage .... she looks after herself by stimming!  It is very hard to get her attention when we want to talk to her though.  She's really off in la-la land.  As we expected, her appetite has reverted to the days of old ..... she hardly wants to eat anything.  The urge to eat is now just habit and if she asks for food, she usually doesn't eat it.

Disaster (of a form) struck for Zoe this morning ... she took Kaylia to the local swimming pool ... and found that the staff had allocated ALL the pool to the lap swimmers .... with no space for kids like Kaylia.  A bit strange I think ..... it meant a short swimming session for her.

Evening .... I've just noticed that the blog has passed a little milestone today ..... twenty four thousand views!

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