Team Kaylee

Wednesday, December 26, 2018

#1940 Wednesday 26 December

A quiet "Boxing Day"..... not much happening

Tuesday, December 25, 2018

Last night I received a lovely email from Chris (Nov13 to Apr14) and the process of reading the email took me "down memory lane"..... remembering all the wonderful people that we have been so fortunate to have share our life.

Thankyou all so much.

Many of you are still close in Kaylia's memory..... she looks through photos on the computer.... and she has the photos around the house. In the future she will tell us just what those memories are.

Today? It's 6:30am and Kaylia is asleep beside me. She has been very excited about "presents" and I can hardly wait to see her enjoyment this morning.

Below is Kaylia with her favourite present.... bubble gloves!

and look what Kaylia made for me!

Christmas lunch at Prama... It was terrible! But Kaylia was chilled......

Monday, December 24, 2018

#1938 Monday 24 December

Christmas eve.

Kaylia had her first massage this afternoon. She seemed to enjoy it.... so there will be more!

Today we took delivery of new furniture for the lounge room and dining room in the villa. The old furniture was 7 years old and had been repaired twice after being broken by guests. The new furniture is very heavy teak.... absolutely gorgeous.... and unbreakable! It was a very low price by Australian standards so we feel privileged to be able to buy it.

Casey's friend Zariah came home today with some beautiful purchases. .... and if you look closely you'll see her latest tattoo.

The Christmas eve preparations are complete. Casey and Zariah have constructed a beautiful table montage that's a very adequate substitute for a tree.. Kaylia has gone to bed very excited.....

Christmas tomorrow.

Sunday, December 23, 2018

#1937 Sunday 23 Dec number two

A friend asked about Kaylia and helping round the house. ..... No... Chores are not really big in her world. I think the picture of her helping with chores is too optimistic. For her to set the table is about a realistic limit. She is still almost totally self absorbed. Occasionally she will seek contact with us... or engagement..... but she mostly stays within her world. This means that she is fairly easy to care for..... but I don't think that helping round the house is ever going to be on her menu.

It's sad. It's very hard for neuro-typical people to grasp just what autism is like.... I think you'd need to spend a day or so with us to fully comprehend it. Usually our social engagement is not for a long enough period. I think visitors possibly view us as being rude.... but we constantly have half our attention on Kaylia.... and that is not good for social interaction!

Uh oh.... Now I think I know why I haven't been feeling crash hot for the past few days! I think I have some kidney stones trying to say hallo. Ah well.... I know what to be on the watch for.